2008

So we made it through 2008 without a major bleed. Without a port or home therapy. We were lucky ones. At least that's how I see it. Being a mom of two kids naturally lead me to my daily mantras. Get through one day at a time and celebrate the small wins. Don't sweat the small stuff. And most importantly, when the going gets tough, always remember that you will never be given more than you can handle. No matter what your beliefs. Being a mom of a baby with severe hemophilia on his way to toddlerhood causes me to say this more than once a day. Oh and that baby having a 3 year old "spirited" big brother pretty much puts me on the fast track to heart attack city many days. Here's what I am also dealing with: The pressure of outside family and friends wondering if Will should wear a helmet. We aren't to the prophylaxis stage yet so some days I am thinking it's a good idea, but most days I think he needs to be as normal as possible. Current situation: Had a mouth bleed over the weekend, got crummy weekend on call help. Used Amicar for 24 hours and stopped. Mouth bleed started again on Tues. also got a nasty bruise on Monday. Ended up getting a treatment Tues afternoon. Just finished 48 hours of Amicar. I'm tired! I almost wish for a bleed to we can start home therapy. The not knowing when it could happen makes me crazy. But overall, I am thankful that we got through 2008 withOUT a bleed. And hey, going to the hemo/onc clinic at Childrens (and the ER for that matter) makes me still realize that we are the LUCKY ones. We can treat this. We can manage this. We can survive this.