Friday, March 13, 2009

where did I leave off??



I haven't been very good about blogging lately and last week pretty much wore me out for awhile.  We spent a week in CA near the end of Feb and all went well.  My mom has a lot of hardwood floors but Will didn't get anymore banged up than usual.  The trouble started after we got home.  That weekend Will woke up with a swollen forehead and eyes.  He looked like the weird guy out of the movie "Goonies."  I called the nurse who was some random hematologist that I haven't had the best luck with but we headed over to childrens hospital ER.  UGH!!!  almost 4 hours later and pretty much our Sat. shot we were done.  Somehow they didn't get the message that we were coming and we got triaged as if we were just some random people.  The doc was asking me questions like "how was he delivered, etc."  I gave answers but kept asking when we could get treated.  They wanted to do a CT and we questioned that.  I still was asking when my son would get treated.  I had factor with me and just wanted to get it mixed and an iv going.  It was frustrating!!  Finally I asked to speak to the hematologist.  I was not going to have anything done until he came down!  He was furious as well.  Long story but we finally got treated and were on our way.  The nurse did a hep-loc and we had set up an appt for Sun.  unfortunately Will pulled his IV out during nap time.  His crib looked like a murder scene!  Blood on his face, his crib, etc.  We ended up treating him for most of the week.  Driving to childrens hospital everyday.  It about ba 1/2 hour drive so it's not terrible.   Tues. we thoguht we'd try the hep-lock again.  I even had the nurse shave his head a little since the scalp veins are pretty much the onlyplace we poke these days.  He slpwt through the night and didn't seem to be bothered by it.  Our nurse practitioner showed me how to mix his factor and away we went.  Well Wed morning after flushing his IV and waiting for a phone call, the kid pulled out the darn IV!  Back to the hospital for a couple more days...Somewhere in there I was in a car accident with the kids, although minor, still another stress to the system.  This week so far so good.  Will still has a black eye but pretty much back to normal for now!  What I learned?  Stand your ground and advocate in the ER.  Ask for the IV team if the the other nurses can't get the job done, they are the most awsome people on the planet.  Last but not least, a drink after the kids go to bed somehow helps get through another day!

1 comments:

joanne said...

God Bless you and your family.
As if hemophilia is not enough to deal with. God gives us these challenges to make us stronger. I hope this weeks goes much better for you =)