About 7 months ago we entered the world of Hemophilia. Our yougest son, Will was diagnosed when he was just 4 months old. This blog was created to tell our story and to share our experiences with others. Hemophilia is a rare, inherited bleeding disorder that is passed down, most commonly, from mother (the carrier) to son. In our case it was "hidden" and Will is the first living male to have it. Since then, I have been in the process of DNA testing and have found out that I also have low clotting levels (34%) my mother has 32%. I have a younger brother who is unaffected and an uncle who is unaffected. We had no knowledge of being carriers until now. In all other ways, Will is normal and healthy. Hemophilia is just a bump in the road of our journey....
1 comments:
I saw you joined the Hemo group on Facebook...my little one has Type A too, 2% level so not severe but borderline. We have not had to treat him yet, other than his circumcision, we knew he had it well before he was born. I will keep up with your blog...us moms are few and far between!
Nichole
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