Sunday, December 7, 2008

getting up to date


So let me catch you all up to date. May 2008 found a huge bruise on Will's chest. Realized it was not normal and got in to the pediatrian asap. Luky for us our's was available. Cause it would not have been pretty if we would have gotten any ol' doc. I explained that the bruise was new, and didn't know how it got there. Also told her about a couple of other incidents. At 8 days old I took Will to the ER for a pku prick that wouldn't stop bleeding. I also called the nurse after his first set of vaccines when I noticed the area was very red and swollen. In both cases I was given a basic brush off. Like "oh, yeah, that happens some times."
So the day of the bruise our doc called another associate in. She took one look and said, "it's a bruise" and walked out. Then I heard them quietly talking outside the door. I know that other doc thought the worse. Child abuse. And being that I have a son 2 years older I don't even want to speculate. But our doc was great. She told us to get testing right away. I just love her!! We did this and spent the next 48 hours at 2 hospitals trying to get blood from a healthy fat baby, then waiting to be given factor, to speaking to a hemaphilia nurse about what it all means. The first hospital was the one nearest our house. Clearly not prepared for drawing blood in a fat baby arm. After 6 pokes, blood and tears from mom and baby, we headed to Seattle Childrens. A few hours later, success. Now the waiting. Then sitting in the ER, Will given a full exam. 2 hours later, we are admitted to hemo/oncology ward. This is NOT a fun place to be. We are the lucky few. This is the floor for VERY sick kids. Cancer kids. My husband's sister died here. It was a lonely and frightening night. Will didn't receive his first factr treatment until 3am. Then we were able to get a little rest. By 10 am we had confirmed with everyone the severe A hemophilia diagnosis. We spoke to a hemo nurse and our journey began. Our first thought was...how do we keep him safe? Bubble wrap??

0 comments: